Up to 3% of all people diagnosed with COPD may have undetected Alpha-1.
3%
Improving the lives of Alphas
AlphaNet Canada
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lternative treatments are very tricky as there isn’t usually a lot of research done
The internet is full of anecdotal evidence from people who have tried various treatments, but scientific research is slow to investigate
There are thousands of products on the market, but only few scientists are investigating their effectiveness
People often think that natural products are harmless because they’re natural. However, this isn’t always the case; natural products can still be harmful and/or interact with any medications that you may be on. It is important that you tell your healthcare providers about any naturopathic supplements that you are taking
Alternative Treatment
Supplements Commonly Used for A1AT
FAQ
Living with Alpha-1
Get access to the comprehensive Big Fat Reference GuideTM (BFRG).
Skinny Little Reference Guides
Topic specific guides to meet your needs.
Guides to living with Alpha-1
develop relationships with other patient groups who could provide resources and information
liaise with and provide information to physicians and the wider medical community
provide information and encouragement to patients and caregivers
By enrolling with Alpha-1 Canada, you can help us identify the number of Canadians diagnosed with Alpha-1, which helps us advocate on your behalf when we are working with provincial and territorial public drug programs to help you get access to therapies.
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Parenting is challenging at the best of times but juggling childcare while managing a rare disease brings additional heartache to Kelly, who would love to be able to run alongside her three active children.
Kelly’s Story
Our patients
Dr. Ken Chapman, a clinician and global leader in alpha-1 antitrypsin deficiency research, directs AlphaNet Canada in sharing research and disease management information with Canadian patients. He works alongside Angela Diano, Executive Director, who is committed to ensuring equitable access to testing, treatment, and support. Together, they strive to improve the lives of those affected by Alpha-1 Antitrypsin Deficiency in Canada, supported by AlphaNet Canada Coordinators nationwide.
Dr. Kenneth Chapman & Angela Diano
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Alpha-1 Canada’s mission is to advocate for Canadians affected by Alpha-1 Antitrypsin Deficiency and to provide education to patients and the healthcare community to increase awareness and testing for this genetic disease.
La mission d’Alpha-1 Canada est de militer pour les canadiens qui souffrent d’un déficit en alpha 1-antitrypsine et d’offrir de la formation aux patients et à la communauté médicale afin d’augmenter la sensibilisation à cette maladie génétique et aux examens possibles.
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